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Help Iona-May

Goring by Sea, Worthing

£69.85 raised

14 supporters

About Help Iona-May

Hi my name is Iona-May...... I was born 9 weeks premature, and as a result of a complicated birth have Quadriplegic Cerebral Palsy. The doctors didn't hold much hope for me and gave my mummy the devastating news that I would not live past 72 hours at one stage and although I have been strong and fought on I cannot sit, stand, walk, or talk and I am registered blind. I suffer from seizures and have bilateral hip dysplasia (for which I have just had major surgery) I am reliant on the assistance of my family and carers for all aspects of daily life. I am now 5 and have just started primary school. I live in a house where my bedroom is upstairs. My mummy has to carry me up and down the stairs everyday, which is very hard for her as I am getting too big to carry. I also have carers that come to look after me sometimes to give my mummy a break, but due to health and safety regulations and insurance policies they are not allowed to carry me up the stairs or lift me around the house, so mummy has to stay close in case I need her. (This kind of defeats the point!) It is also very dangerous when mummy has to give me a bath because our bathroom is too small for specialised equipment so she has to lift me in and out and when I am slippery it is very difficult for her. I need to have my house adapted to accommodate me and my wheelchair; I need a bedroom and bathroom on the ground floor. As well as having doors widened and thresholds lowered for access. All of this comes at great expense, we have been told in the region of £60,000 to £70,000. I am entitled to a grant from the local authorities but this will only cover £30k of what I need to complete the work. This will make a huge difference to my life and to those who care for me, so I am asking for your help...... PLEASE HELP ME TO RAISE £30-£40k TO BUILD ME A BEDROOM AND CHANGE MY LIFE FOR THE BETTER.

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